I wish I had connected with ConoverSystems.org earlier after my POI diagnosis.
ConoverSystems.org directed me to get integrated care for POI in my own community.
Now I am feeling better than ever.
I was diagnosed at age 35 with POI when trying to conceive my second child. I saw a well-respected reproductive endocrinologist at a leading IVF clinic in Boston who recommended I start oral hormone replacement immediately. I was told I had few options for trying to conceive, emphasizing that I needed to focus on my bone health. This was extremely distressing advice because my primary objective was to get pregnant. Since I had conceived at age 32 with no problems I was in shock! I couldn’t find a clinician with experience in POI. After two (precious) years of being lost and trying holistic approaches to conceive, I connected with ConoverSystems.org. They helped me communicate with my local doctors. With this guidance I found an appropriate treatment for POI that would also still allow me to try to conceive while protecting my bone health. Also, ConoverSystems.org connected me with women with POI who had pursued other options for growing their family including egg donation. I’m now 40 years old and expecting my second child.
I'm a veterinarian-scientist and board-certified veterinary pathologist that specializes in animal models of infectious diseases of global health importance such as tuberculosis (TB), HIV, and Zika virus. I completed my D.V.M. (Doctor of Veterinary Medicine) at the University of Florida, a Master’s in Global Public Health at the University of North Carolina at Chapel Hill, and my Ph.D. in Biological Sciences at the Harvard School of Public Health. My independent research focuses on pre-clinical studies for vaccine development at Beth Israel Deaconess Medical Center, a teaching hospital of Harvard Medical School in Boston, MA. I live in Southborough, MA with my husband and 7-year old son and a rambunctious Boston terrier.
I was never the same after I had a miscarriage. For 10 years I struggled with night sweats, insomnia, hot flashes, missed periods, and crying spells. My emotions and moods were all over the place. I just could not understand what was happening to my mind, body and soul. During this time, I tried to find a doctor who would listen to me and help me find out what was going on. I was dismissed. I was told to take birth control until I wanted to try and have a baby again. At that time getting my health and wellness back was my focus. Finally, after seeing several physicians I found a wonderful Nurse Practitioner who told me she thought I was in early menopause. After I had left her office in disbelief she called back and told me I had POI. I couldn’t believe after all these years she was so easily able to pinpoint this mysterious condition. In my desire to learn more about POI I researched the Internet and found a study at the National Institutes of Health Clinical Center in Bethesda, MD. I immediately signed up and was thrilled to participate. Upon admission to this program, I was paired with a most wonderful roommate who was going through the same thing as me. We were able to connect on a deep level of understanding. I was so comforted to have the NIH team confirm the diagnosis and teach me ways to better manage my condition. I am forever grateful for the Principal Investigator on this protocol, Lawrence M. Nelson, MD, MBA. He spent an extensive amount of time with me thoroughly explaining POI and how we could live our healthiest life. His guidance and empathy helped me get through this most difficult time. The experience at the NIH changed my life for the better.
As a professional advocate in the health care industry I know all too well the barriers facing patients on their journey to wellness. I am Director of Resident Services at Westminster Canterbury of Lynchburg where I serve resident members of a Continuing Care Retirement Community. I oversee the daily life, care, programs and amenities for residential living. I have over seven years of senior management experience for a healthcare entity providing the full continuum of care. My personal mission is to put the person at the center of the healthcare enterprise.
Amy is a vocal advocate for women’s health in general and, more specifically, for women who have Primary Ovarian Insufficiency (POI/POF). She participated both in the NIH sponsored natural history study on POI and the NIH genetic testing study for women with POI. The Reverend Amy C. Gopp received her BA in International Relations at the American University in Washington, D.C. She completed an MA in Conflict Resolution at Antioch University and an MDiv from Union Theological Seminary in New York City. In addition to her role with ConoverSystems.org, Amy also serves her alma mater as Vice Chair of the Union Theological Seminary Board of Trustees. She most recently served as Vice President of External Relations for IMA World Health in Washington, DC. She is a passionate activist for gender justice and girls and women’s education and empowerment.When she finds a precious free moment, Amy loves to cook, sing, and travel and cherishes time with her husband, artist and eco-activist Frédéric Vigne.
Health coaching is a powerful force which employs motivational interviewing as a means to facilitate healthy lifestyle change and improved quality of life. Larry has proven expertise in this domain. In fact, Larry is a women's health coach par excellence. He is nationally certified as a Health and Wellness Coach by a program sponsored by the National Board of Medical Examiners and the International Consortium for Health and Wellness Coaching.
Maintaining healthy relationships is an important part of health. Larry has proven expertise in this domain. He is approved to lead educational workshops on healthy relationships based on research conducted by The Gottman Institute.
Internationally recognized for his work on Primary Ovarian Insufficiency (POI), Larry has conducted 30 years of breakthrough research involving over one thousand women with the disorder. He is the author of over 100 academic articles on POI published in highly respected medical journals such as the New England Journal of Medicine, Nature Genetics, Journal of Clinical Endocrinology and Metabolism, Human Reproduction, and Fertility and Sterility. His work on POI at the National Institutes of Health Clinical Center took an integrated approach and always put the patient at the center of the enterprise. His POI research spanned the boundary between the basic science of reproduction and the clinical care of women with POI. His major interests are hormone replacement therapy (HRT), bone health, and the emotional health of women with POI.
Founder and CEO
Alison is an experienced social entrepreneur who brings business savvy to real world problems. Her focus now is to help women with primary ovarian insufficiency find a medical home where they can obtain integrated compassionate care. Her fundamental aims are to increase access to quality health care and make it more convenient for all. Women with POI have difficulty finding integrated care and ongoing appropriate management for their condition.
ConoverSystems.org is addressing this problem by creating a cloud based virtual clinic. We call this process to improve patient care OMNI PORTAL (R).